tag:blogger.com,1999:blog-7231876981906489792.post6289101793405794754..comments2024-01-13T15:30:03.851-08:00Comments on My Two Happy Homeschoolers: Update--Little Bean's JXGAnonymoushttp://www.blogger.com/profile/13841297851874457415noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-7231876981906489792.post-12095552357146141142011-11-07T13:49:26.573-08:002011-11-07T13:49:26.573-08:00I just came across your blog and it is so very fam...I just came across your blog and it is so very familiar to me. Our 3 year old son was diagnosed with JXG when he was 1. We too were told "not to worry" and watched as the lesions continued to multiply over the last 2 years. We heard about, and subsequently met with, Dr. Ken McClain at TX Children's Hospital. He is an expert in Histiocytosis Diseases, and specifically JXG. We sent him an email and he quickly responded...we then met him in person. If you have questions or concerns, I would suggest reaching out to him. I hope all is well with you and your family!Chttps://www.blogger.com/profile/06585124589219441544noreply@blogger.comtag:blogger.com,1999:blog-7231876981906489792.post-77724894280080951922010-04-14T18:59:56.385-07:002010-04-14T18:59:56.385-07:00Wow, I'm so glad that you were able to find mo...Wow, I'm so glad that you were able to find more information on it! It's great that you could do the follow up tests to put your mind at ease on those things. Information is power. :) I love his quote at the end!Nhttps://www.blogger.com/profile/04748630470893294294noreply@blogger.comtag:blogger.com,1999:blog-7231876981906489792.post-49683868346069193612010-04-14T12:59:15.281-07:002010-04-14T12:59:15.281-07:00He is so adorable and handsome!
I think we all pu...He is so adorable and handsome!<br /><br />I think we all put a lot of trust in doctors, that's what they are there for. They are supposed to know what is wrong. I will keep you all in my thought that the JXG does go away or at least never gets worse!Jennyhttps://www.blogger.com/profile/00342467790727259855noreply@blogger.comtag:blogger.com,1999:blog-7231876981906489792.post-44585261410857604932010-04-14T11:05:55.782-07:002010-04-14T11:05:55.782-07:00It really is tough when you have to teach your doc...It really is tough when you have to teach your doctor about something. (For us it was some of the signs of apraxia).<br /><br />As you journey through these next days and months, I pray that you will not live in fear and will continue to trust in the Lord.Annette W.https://www.blogger.com/profile/02498639468291720406noreply@blogger.com